Last weekend Cancer Commons representatives attended Tomstock, an annual benefit concert for the H8 Cancer Foundation. In the spirit of Woodstock, Tomstock was a love-in of sorts, especially for cancer patients and survivors. H8 Cancer has provided generous support to Cancer Commons, enabling us to help more people touched by cancer. We are honored and grateful to have been invited to participate at Tomstock 2016.
Above: Host Kiers Rowley (left) and H8Cancer.org founder and CEO Dr. Simeon Jaggernauth at Tomstock 2016. See more photos of the event on our Facebook page.
Cancer Commons founder Marty Tenenbaum’s story of his own battle with melanoma is featured in an article published in The Sydney Morning Herald. The piece outlines how studying “super responders” could help improve cancer treatment for all patients.
Throughout my treatment, peers have helped me learn about my diagnosis, digest information, and move forward. I was lucky to have a team that knew extending the time of my Perjeta injection could have a positive impact on my quality of life. However, I also know that there are other women who are having a similar experience and may not have this specific piece knowledge within their team. I hope this finds you! I want to share the tidbits I gain from my experience so that all patients have access to the same knowledge, regardless of where you are being treated.
—Cat, a metastatic breast cancer patient
The key to defeating cancer is the ability of doctors, researchers, and patients to share knowledge and insights with one another. In the United States, 1.6 million people are diagnosed with cancer each year. An entire population of patients and families is gaining insights into their cancer every day, but these are not being effectively shared. To end cancer, it is imperative that we create a space for patients to be equal partners in the data sharing conversation. Continue reading…
On May 21, HackCancer held its 4th Annual White Party in San Francisco. 100% of the net proceeds go to Cancer Commons and will help us get the right treatments to the right patients at the right time. A huge thank you to the organizers and to all who attended!
Above: Dominique Kim and Toni Alejandria show their support at the HackCancer White Party. See more photos of the event on our Facebook page.
We’re happy to announce a successful partnership with Gliimpse, a platform that helps people organize their private healthcare info in a single, secure profile. In a case study, several breast cancer patients shared their Gliimpse profiles with Cancer Commons’ expert network. We were able to respond with insights to help patients navigate their own care.
Next step: patients will be able to donate their Gliimpse profile data for research that could help other people like them. Being able to track individual patients in “n=1” studies could accelerate treatment research and allow critical insights to emerge more quickly. Learn more.
At last week’s Radiological Society of North America Annual Meeting, radiologists were encouraged to use social media to guide patients to valuable online resources—including Cancer Commons. Social media gives doctors a great opportunity to connect with patients, said ElliotFishman, MD, at the meeting in Chicago. He urged radiologists to use social media platforms to promote sites like radiologyinfo.org that can help patients learn and be more engaged in their own care.
We encourage radiologists to tell their patients about Ask Cancer Commons. This service helps patients connect with experts to answer questions about treatment, diagnosis, clinical trials, and more.
A stronger online presence could also allow radiologists to monitor and respond to reviews, improving their relationships with patients. Read more at Medscape.
We’re thrilled to announce that South by Southwest (SXSW) has named Cancer Commons founder Marty Tenenbaum a 2016 Dewey Winburne Community Service Award Honoree. Marty joins nine other remarkable honorees, all of whom use digital technology to help others. They were selected based on their qualities of “community, compassion, care, education and positive energy.”
Marty—along with the other awardees—will share his story on March 13, 2016 in Austin, TX.
Some cancer patients have outstanding or unexpected responses to treatment. These “exceptional responders” can reveal new treatment approaches and new directions for research. Now, Cancer Commons has partnered with publishing platform Cureus to discover and learn from these remarkable cases.
We are particularly interested in the treatment options you considered, your clinical/scientific rationale for selecting the treatment, and the patient outcome. Our goal is to share the results with other patients and oncologists who might benefit, so that positive experiences can be quickly explored and negative experiences quickly avoided.