At last week’s Radiological Society of North America Annual Meeting, radiologists were encouraged to use social media to guide patients to valuable online resources—including Cancer Commons. Social media gives doctors a great opportunity to connect with patients, said ElliotFishman, MD, at the meeting in Chicago. He urged radiologists to use social media platforms to promote sites like radiologyinfo.org that can help patients learn and be more engaged in their own care.
We encourage radiologists to tell their patients about Ask Cancer Commons. This service helps patients connect with experts to answer questions about treatment, diagnosis, clinical trials, and more.
A stronger online presence could also allow radiologists to monitor and respond to reviews, improving their relationships with patients. Read more at Medscape.
We’re thrilled to announce that South by Southwest (SXSW) has named Cancer Commons founder Marty Tenenbaum a 2016 Dewey Winburne Community Service Award Honoree. Marty joins nine other remarkable honorees, all of whom use digital technology to help others. They were selected based on their qualities of “community, compassion, care, education and positive energy.”
Marty—along with the other awardees—will share his story on March 13, 2016 in Austin, TX.
Some cancer patients have outstanding or unexpected responses to treatment. These “exceptional responders” can reveal new treatment approaches and new directions for research. Now, Cancer Commons has partnered with publishing platform Cureus to discover and learn from these remarkable cases.
We are particularly interested in the treatment options you considered, your clinical/scientific rationale for selecting the treatment, and the patient outcome. Our goal is to share the results with other patients and oncologists who might benefit, so that positive experiences can be quickly explored and negative experiences quickly avoided.
Thanks to all who joined us on Friday at The Shine Project Fall 2015 Celebration Concert to help cancer patients. We were honored to have had talented artists Nahko and Medicine for the People, Butterscotch, Hillary Fitz Music, and the Peter Chung Band perform at the event.
A special thanks to our amazing friend Heather Rangel and The Shine Project who made all this possible.
Cancer Commons founder Marty Tenenbaum spoke last weekend at Medicine X, Stanford University’s conference for new ideas in medicine and healthcare. He told the story of his personal melanoma fight, and how difficult it was to find the information he needed to beat his cancer. This experience led him to found Cancer Commons, with the goal of developing a rapid learning platform to help patients explore their options and make the best, most personalized decisions about their cancer care.
The Shine Project and Cancer Commons invite you to join us for a night of music, dancing, and community. We’re celebrating the lives of those who have passed due to cancer, and the lives that we’re still living. All proceeds will enable Cancer Commons to help patients navigate their treatment.
When: Friday, October 23, 2015, 7:00 PM PST
Where: Fox Theatre Redwood City, CA
Heather Rangel is a Deloitte partner and a Cancer Commons Pathfinder donor and volunteer. She heads up Project Shine, in which she works with her extensive network to support Cancer Commons. Heather kick-started the campaign by setting a goal she wasn’t sure she could meet—swimming a 10,000 meter butterfly—and raised more than twice her target amount. I spoke with her about her achievement.Continue reading…
Newsweek’s Aimee Swartz writes about how Cancer Commons aims to change the treatment landscape in a new feature article. From the piece:
But what about those patients who’ve had an exceptional response outside a clinical trial? After all, only about 3 percent of the 1.7 million people diagnosed with cancer each year in the U.S. take part in one. “Surely there are other super responders, but unless these cases are published in medical journals or shared at medical meetings, we just are not hearing about them,” Carbone says. It is not uncommon for research data to be published years after being generated.
This is where Tenenbaum re-enters the picture. He drew on his experience as a super responder to start Cancer Commons. The nonprofit organization, based in Palo Alto, California, aims to place data relating to exceptional responders in a free, searchable online database. “If there was another patient who had similar mutations as me and who had a miraculous response to a drug, I’d want to know before I made any decisions about my treatment. Wouldn’t you?” he says.
Tomorrow, Cancer Commons Executive Director William Wong will speak at the C-Change Big Data Meeting in Alexandria, VA. C-Change is an organization that brings together cancer leaders from across the U.S. to discuss major issues in the field. William will show how Cancer Commons is using data to improve the patient experience at every stage of treatment.